Thursday 3 November 2011

Been awhile since we dished out the scoop on the big guy!

Think we're gonna have to talk to Santa to see if he can bring him some suspenders.


Awhile back we got the results from his MRI - it was good news in that the neurologist saw nothing of concern. His ventricles are still dilated but there is no brain tissue damage. The bad news (if you can call it that) is we still are no further along in determining what is causing his delays.

Since the MRI results we've talked with our Pediatrician, our Neurologist and the Birth to Three Therapist and are in process of doing the following things:

The Pediatrician scheduled Logan a hearing test coming up later this month. He also managed to get him in for an appointment with a Developmental Specialist at Childrens Hospital in Hartford in February 2012. The waiting list for these docs are sometimes up to a year so I'm pretty siked he managed us an appointment in February.

The Neurologist sent us a prescription to have blood work done... the first test is a gene analysis to look for any gene mutations and the second test is for Fragile X. Kevin took him for the blood work while I was in Ohio and we should get results back sometime this month

He has Birth to Three appointments on a weekly basis with the Occupational Therapist, Physical Therapist, and Developmental Teacher visiting twice a month and the Speech Therapist visiting once a month (we are in the works of increasing the Speech therapy) We will re-evaluate our goals for Logan this month now that he has been in the program for 6 months and in April he will be re-scored.

The improvements he makes are small - yet big in our world. Just today he stood for probably 20 secs on his own. Doesn't sound like much but - I've never seen him stand that still for that long by himself. We're getting there :)

Kevin & I are just trying to wrap our head around the idea that it's very possible if not probable that Reagan will surpass Logan. It will be a bittersweet time and we're trying to mentally prepare for it - but who knows what it will be like when it actually starts happening.

We worked on his standing again this morning and I managed to get it on video....twice! The second video he gets a little frustrated (as do I...lol). Think we both worked up a sweat.




6 comments:

  1. Good Job Logan!!! He's all boy - just wants to throw that ball rather than simply hold it. You are such a good Mommy Erin - keep up the awesome work that you and Kevin are doing.

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  2. WHOOP WHOOP!!!!!!!!!!!!!!! Logan GREAT JOB! Really proud of you :)

    Erin - I admire your patience and dedication. And I really like your shirt :)

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  3. Great Job Logan! Erin, you obviously have this down, I like you had the spare ball locked and loaded in the second video after he tosses the soccer ball! nice!

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  4. Ditto Jenn, Andrea and Tim!! Logan has so many doors being opened for him because of his wonderful, loving Mommy and Daddy!

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  5. You are wonderful! Can't wait to see the lil' boot camp in action. You guys are always in my thoughts. Miss you.. mrrrr

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  6. Erin, thanks for the update on Logan. It sounds like you guys are doing all the necessary interventions. He is such a precious lil guy and so handsome!
    Layla starts speech therapy tomorrow, and is slated to have it one hour per week. Will keep you posted on how that goes. Loves to you and your precious babies:)
    Joyful

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